How common is it to be denied Social Security Disability Insurance (SSDI) benefits even if the person has a legitimate disability?
It’s very common. And very sad, considering that they’re fighting a sick person over money that will barely keep them alive and won’t keep them above the extreme poverty line, meanwhile, all these good people paid their taxes so that sick people unable to work could take a rest.I have refractory epilepsy. It started when I was 13. Despite the fact that I take my medications as directed and have taken over 3 medications, I still have seizures. It’s rare I go a week without a petit mal or a month without a grand mal.The problem is you have to prove you’re having seizures to Social Security, and you have to prove you’re having as many as you’re saying. Most people with epilepsy would probably rather work. I would rather work. Macdonalds probably pays its cashiers more than disability is saying I don’t deserve.The problem is you can’t necessarily prove how many seizures you’re having you just have to take my word for it, and they denied me because they said I wasn’t taking my medication and so if I was having more seizures it was my own fault.The thing is I was taking my medication. Now it’s true, I hadn’t been to the neurologist in a while. This is because when Illinois Medical Marijuana started up I asked my neurologist about a letter saying I had a qualifying condition—epilepsy. This might have been before it became a big deal that marijuana helps refractory cases, or it might have been after. Anyway they went on and on about how they didn’t think it was a good idea and the hospital doesn’t have a policy and how they wouldn’t. When I tried to argue with them, they through me out of the office. I called them a racist. I might have gone too far, but really, it’s Illinois fault that I asked for marijuana, and the country’s fault that people didn’t want to cooperate, and also the country’s fault that I have solid evidence that the drug laws are racist. I’m not a violent or argumentative person. I had always tried to be respectful before. However, I did argue with the neurologist, and I didn’t know that they could just refuse to treat me. Also they did genuinely anger me and I genuinely thought they were in the wrong. I didn’t yell.So what I did was I found another doctor who would give me the letter to the Medical Marijuana people. He was a primary care doctor but he would prescribe me my meds. I put off getting another neurologist because neurologists tend to always order EEGs and MRIs while not changing your meds, they want to see you constantly, even though they really are doing the same thing as my primary care doctor: renewing my prescriptions to the pills that I’ve been prescribed.This is the truth: neurologists are crooks. There isn’t a cure for epilepsy and there isn’t a treatment that works, so they prescribe a bunch of pills that cost a lot of money, and even get away with prescribing diets and surgeries and implants that can do more harm than good.The neurologist is a crook legal drug dealer when it comes to epilepsy because no one can understand it and by constantly ordering EEGs and MRIs all they’re doing is wasting my time and treating me like a lab experiment. I’m sure they find it intensely fascinating that the spikes on an EEG get way spikier when seizure activity happens, but I don’t care, I hate having all that stuff glued to my head and they’re asking for too much of my time.So it was great to just get these refills and then the marijuana, which has helped my seizures immensely. At least if I’m going to take a drug that’s not going to work, let it be a drug that’s going to get me high. Anyway, marijuana does help. It makes recovering from grand mals easier and I can use it like an inhaler when I’m scared that the seizures will get worse. Was I a victim of false hope or is everyone around me trying to manipulate me to help them because of mass incarceration and the fact that this is actually a race and social justice issue? Oh well, I can deal with that, I guess. I’ll pray to Shiva for the seizures to go away, it’s his favorite plant.But the thing is social security sees me not seeing a neurologist as a sign that I’ve gotten better, which I haven’t. I have refractory epilepsy. So they’re going to fight me about being disabled. Also I’m only 29 and when I’m not having seizures can do all kinds of work, except work that requires driving. I can’t drive.Fighting me about paying me 3 million because you lost a bet I understand. But this is an organization that every worker pays into. That’s our money. I haven’t paid into it, that’s why my dad wants the “disabled adult child” thing so that I get medicare. It’s his money, he worked for the electric company, and he was a good worker. It’s his money that he got because he was a genuine public servant. Everyone loved my dad, although he is sort of a quiet and reserved fellow. And get this, if I ever get married, they get rid of it, and if I ever manage to get a job, they get rid of it. Fighting me about paying a barely livable income to someone with a real disability I don’t understand. You’re fighting me over a measly penny.They expect me to get a job and the employer to put up with grand mal seizures. They only happen once a month, after all, and perhaps those petit mals people will just ignore. The annoying thing is employers always want to call the emergency room about a seizure and I have them too often to want to deal with that. I want to go home and go to bed. I’ll be fine. They expect the employer to have a place where I can lay down. Accommodations for people with special needs, right? Thing is, sometimes when I wake up I have amnesia.This is all made more complicated by the fact that I went on medical marijuana, and employers don’t put up with that. If they do drug tests I will fail. So basically Illinois has made sure I’m stuck in a toilet and am going to die as a result.For now I’m just grateful my dad loves me enough to take care of me and when I mention a job he doesn’t want to hear it. I got to get an appointment with a new neurologist if I ever have a chance of proving to them I have a disability. So I have one coming up and have to hope they won’t freak out once I mention medical pot. The last one I tried to see did, accused me of not wanting to get better, just wanting social security. I didn’t see her again.That is not the case. The thing is, I would rather have lied and weaseled my way until I was an animator at Pixar, Disney, or Dreamworks, just pretended that my health wasn’t on the line. But that didn’t happen because this happened. And they could always see through it eventually and then they’d get mad I didn’t tell them. I wish I didn’t have the grand mals. If I only had the petit mals, I would just lie my ass off and keep working.We don’t live in a society that takes care of the sick. We live in a society that expects everyone to work even if they are genuinely sick. That’s why they fight sick people over a lousy penny. Over nothing. Over scraps. And then the republicans go on stage and call the sick lazy people who don’t deserve it.Maybe this is all my fault. Maybe I’m a genuine problem child. A sociopath. Or maybe not. I mean, it isn’t about whether or not the neurologist thinks the medical pot is a good idea it’s whether or not I do and I thought it would help. All I’m asking for is proof that I have the condition from someone, if they don’t know how the program works, they can figure it out, isn’t that their job. Doctor’s on a power trip because for over ten years I’ve done exactly everything they’ve told me to do and never questioned it, at least not to them. Refusing to do their job is what the neurologist did.